Jace has been doing great, getting into trouble, playing/fighting with his big brother and learning so many new words!! He is now saying "ok, please, thank you" and at the appropriate times! He has been climbing so much lately, gives his momma a shot of adrenaline every time I see him up on something:) I keep reminding myself that these are the times that I will need to remember while he is in the hospital.
We will be going to UCLA next Thursday, August 8. We have an appointment with Dr. Churchill at 11:00am. We don't know much about him but our insurance wants us to go talk with him about Jace. We still feel that the best place for Jace to go is Hopkins because they do so many in a years time 5-7. Most doctors don't know about this rare condition. John's Hopkins is #1 in the world at treating Cloacal Exstrophy and London is #2.
We are asking for prayer for softened hearts on the insurance directors and on Dr. Churchill. For him to see and understand our concern and to allow this to be done at Hopkins. Also for courage on our parts to be able to ask the correct, direct questions about his procedure and to ask the hard questions.
We have been so blessed by great friends
through this! Ian will get to go stay at a friends home overnight, which
he is already starting the countdown of "how many sleeps" on a chart:)
We are truly blessed in every aspect of this journey. Thank you all for
your prayers and we will update you when we return!
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